Monday, November 10, 2008

Facing Life with a Lethal Gene

I was getting ready for class tomorrow and came across a fantastic article in The New York Times, Facing Life with a Lethal Gene. The article itself is extremely interesting, with a lot of useful information about Huntington's disease (HD) and some of the issues surrounding genetic testing of HD. Issues surrounding stigma were handled particularly well, I thought.

Beyond the basics of the story, though, this particular article struck me as an example of what online news coverage should be. The (very long) article is supplemented by great video content and images, elements that added a great deal to the story but certainly wouldn't be possible in a print version of the story.

I'm curious to hear what my students have to say tomorrow morning about HD, as well as genetic testing in general. It'll also be interesting to hear their thoughts on how some of the stigma surrounding HD might fade as (1) genetic testing becomes more commplace and (2) the topic pops up in popular TV shows like House, where one of the doctors (typically called 13) recently discovered through a genetic test that she has HD.

Only slightly related to this, I never realized until the last couple months how many topics House raises that are pretty cutting edge. And while I was much more aware of Boston Legal doing that, it's been especially relevant in the last few weeks. Tonight's episode, for example, focused on a girl who was planning on getting an abortion - but the decision was driven by the fact that she was going to have a girl, and she would have wanted to keep a boy. I'm sure parents making decisions about what kind of kids they want will become a more common issue in the coming years, and it's fascinating to watch shows introduce these controversial topics into the public consciousness.

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